Free materials provided by the CDC Division of Blood Disorders

Data provided by the Registry and Surveillance System for Hemoglobinopathies (RuSH) pilot project show state-specific facts and figures on sickle cell disease and thalassemia. There is data available for 5 of the 7 states that participated in RuSH, data is available for 5 stat, for 5 of the 7 state funded seven states to participate in data collection on sickle cell disease and thalassemia.
Sickle Cell Disease in California

Sickle Cell Disease in California (for Providers)

Sickle Cell Disease in Georgia

Sickle Cell Disease in Georgia (for Providers)

Sickle Cell Disease in Michigan

Sickle Cell Disease in North Carolina

Sickle Cell Disease in North Carolina (for Providers)

Sickle Cell Disease in New York

Sickle Cell Disease in New York (for Providers)

Living Well with Sickle Cell Disease: Self-care Toolkit Toolkit for Living Well with Sickle Cell Disease
The toolkit is a collection of materials that can be used to help people living with sickle cell disease(SCD) to manage their health and keep track of important information regarding medical care and treatment. The toolkit has multiple uses it is designed to help: (1) patients and their caregivers with the daily management of the disease, (2) organize important information regarding medical services, and (3) assist with maintaining communication between the many health and service providers that are involved with patient care.
Fact Sheet: Sickle Cell Disease
What you should know about sickle cell disease.
Fact Sheet: Sickle Cell Disease and College Fact Sheet: Sickle Cell Disease and College
Nine steps to living well with sickle cell disease in college.
Fact Sheet: Sickle Cell and Pregnancy Cover Fact Sheet: Sickle Cell and Pregnancy
What you should know about sickle cell disease and pregnancy.
Fact Sheet: Sickle Cell Trait Cover Fact Sheet: Sickle Cell Trait
What you should know about sickle cell trait.
Living Well With Sickle Cell Disease Cover Living Well With Sickle Cell Disease
People with sickle cell disease can live full lives and enjoy most of the activities that other people do. The following tips will help you, or someone you know with sickle cell disease, stay as healthy as possible.
Five Tips to Help Prevent Infection Cover Five Tips to Help Prevent Infection
Common illnesses, like the flu, can quickly become dangerous for a person with sickle cell disease. The best defense is to take simple steps to help prevent infections.
Emergency Guide: When to See the Doctor Cover Emergency Guide: When to See the Doctor
It is very important that every person or family with a young child with sickle cell disease have a plan for how to get help immediately, at any hour, if there’s a problem. Be sure to find a place that will have access to your medical records or bring a copy.
National Sickle Cell Disease Directory cover Sickle Cell Disease National Resource Directory
The Sickle Cell Disease National Resource Directory is a compilation of national agencies, state-based health providers, and community-based organizations
that provide services and resources for individuals and families affected by SCD.

Content source: Centers for Disease Control and Prevention

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