Welcome to WISSH the WORLDWIDE INITIATIVE ON SOCIAL STUDIES IN HAEMOGLOBINOPATHIES. We are a group of social researchers interested in applying the best social science research to the world’s leading genetic conditions, sickle cell and thalassaemia.

Mission Statement

 “To advance social studies in the service of the global sickle cell disease and thalassaemia communities”

WISSH Aims

  •  To promote and support high quality social and inter-disciplinary studies into sickle cell disease and thalassaemia.
  • To engage with those planning or delivering health services for sickle cell/thalassaemia in order to include social science research.
  • To seek to make social science research relevant to the improvement of the lives of people living with sickle cell disease and thalassaemia.
  • To involve people living with sickle cell disease and thalassaemia in identifying social research questions and to communicate to them in accessible ways research results.
  • To maintain synergistic relations with relevant national and international sickle cell disease and thalassaemia networks.
  • To advocate for awareness of the challenges faced by people living with sickle cell disease or thalassaemia.
  • To help build capacity for social research on sickle cell and thalassaemia disorders and carrier states.
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The thought made him uncomfortable because he doesn’t want to do anything just for a big paycheck.

He didn’t want to be wrong when it comes to this: “Who knows how many hits are too many?”

Part of a larger discussion

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